S3 Ep. 2: “Love Has No Limits: One Couple’s Journey with GBM” with Guests Nick Adamski & Diane Pathieu

SEASON 3 Ep 2: “Love has no limits: One couple’s journey with GBM” with guests Nick Adamski & Diane Pathieu

 

            “It’s hard when someone puts an expiration date on you,” said Nick Adamski, glioblastoma thriver and one of our guests for episode 2 of Season 3.

Nick, with the support of his wife Diane, has been beating the odds against glioblastoma since December 2020. Walking through this rare cancer is not pretty, nor is it for the faint of heart. When Nick and Diane sat down with us, he didn’t hold back; painting a picture of just how hard this journey has been and the obstacles he’s had to overcome.

A previous firefighter, it’s an indication of the kind of man Nick is–a fighter! However, it’s not just his own inner strength that is helping him win against glioblastoma (GBM), it’s the love he and his wife Diane share that transcends this disease.

A television news journalist for ABC7 Chicago, Diane exemplifies what it means to be a “caregiver.”

“It’s not easy to fight brain cancer & continue to go in front of a crowd to tell your story & push for more research and education. I’m so proud of my husband Nick for pushing through,” she said.

Diane and Nick have willingly shared their story on television, at conferences, and on the air. Recently, they were the special honorees of The Mary E. Smith Foundation annual “Shoesational” Scholarship event. The foundation provides resources to assist in the early detection and prevention of brain tumors and supports research through scholarships and grants.

Along with this, Diane and Nick share education on Methylation Profiling at Northwestern Medicine. Advocating for people to be more aware of this option when it comes to fighting brain cancer, it’s yet another arm of our Season 3 theme “Advocate and Navigate.” You can hear more about this in our discussion with them, and find resource information below.

The kind of love that exists between Diane and Nick is the kind of love that pushes boundaries, stands the test of time, and holds up during the toughest battles in one’s life. It’s the kind of love you need when you are faced with the hardest part of marriage, “In sickness and in health.” You never think you will have to face this very real vow so early in a marriage, but for Diane and Nick (as it was for me and Mike), that’s exactly what they are faced with–and it’s their love that is pushing back against brain cancer. It’s their love that shows everyone that this kind of love truly does exist, it’s attainable, it’s real, it’s powerful!

Learn more about their journey @dianepathieu (on Instagram).

Listen to episode 2 now anywhere podcasts are played or right here on the website!

Season 3 Premier Sponsor:

 

 

 

Episode Sponsors:

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Resources from SEASON 3 Ep. 2:

Articles/blogs:

Northwestern Medicine Blog (Methylaton Profiling)- Going Beyond the Microscope: Discovering the DNA Fingerprint of a brain tumor 

Cancer Network- Information on the ROADS Clinical Trial for Newly Diagnosed Metastatic Brain Tumors and how to get involved,

V Foundation- The V Foundation funds Pediatric Diffused Midline Glioma Research at University of Michigan,

Better Health Australia- Strong Relationships, Strong Health,

Lenox Hill Northwell Health News- Brain Tumor Biotech Summit,

National Library of Medicine- The Role of Marital Partners in Cancer Survival,

CBC Canada News- Cancer Outcomes Better for Married, Partnered Patients

Clinical Trials:

CURRENTLY RECRUITING! Imvax Inc. IGV-001- Phase 2b Clinical Trial Combination Immunotherapy in Newly Diagnosed Patients With Glioblastoma,

CURRENTLY RECRUITING! Hillman Cancer Center- Olaparib in Treating Patients With Advanced Glioma, Cholangiocarcinoma, or Solid Tumors With IDH1 or IDH2 Mutations,

CURRENTLY RECRUITING! Roswell Cancer Center- SurVaxM Vaccine-Brain Cancer Immunotherapy,

CURRENTLY RECRUITING! Ivy Brain Tumor Center- INFIGRATINIB IN RECURRENT GLIOBLASTOMA PATIENTS (phase 0 trial),

CURRENTLY RECRUITING! Ivy Brain Tumor Center- Phase 0 Clinical Trial for Recurrent Glioblastoma,

CURRENTLY RECRUITING! Lenox Hill/Northwell Health- Tissue autograft to bypass the blood brain barrier (BBB) in human glioblastoma multiforme,

CURRENTLY RECRUITING! University of California San Francisco- A New Way to Treat Children and Young Adults With a Brain Tumor Called NGGCT (ages 3-30),

CURRENTLY RECRUITING! MD Anderson Cancer Center (includes GammaTile Therapy)- Phase 3 Clinical Trial for Newly Diagnosed Metastatic Brain tumors

Videos:

Want to catch up on your favorite Game On Glio Podcast episodes? Watch here:

ABC7 Chicago News story on our episode 2 guests:

For our grief blog, visit here. For more resources, visit our resource page here.

Hosted by Shannon Traphagen 

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