Game On Glio Talks to Life Recorded About Being a Brain Cancer Caregiver

Life Recorded, a cancer storytelling resource through Roswell Park, sat down with me to talk about brain cancer. We discuss the importance of advocacy, and the very hard road of being a caregiver.

As we come up on the 3rd anniversary of Mike’s death, it has me reflecting on how loss changes us–we are different than we were before. Losing a spouse changes who you are. A little sadder, a little less whole, but also wiser.

Before Mike got sick I was content, safe, balanced, whole. I felt full and at peace with life in general. That changes when a spouse dies. I miss being that happy in life, that content. I miss that part of me. The journey through loss is not a short road and doesn’t heal quickly. But it does soften with time and even though we are not the person we were before their illness/death, we are stronger, wiser and can see life in a whole new way. We understand it’s fragility more deeply, we are willing to not wait for life to happen but to embrace it as it is unfolding. And, we learn how to find the joy within the story we are living.

You can watch the full interview here:

If you are curious about current clinical trials, please visit our resource page or look into the current trials below:

CURRENTLY RECRUITING! Imvax Inc. IGV-001- Phase 2b Clinical Trial Combination Immunotherapy in Newly Diagnosed Patients With Glioblastoma,

CURRENTLY RECRUITING! Hillman Cancer Center- Olaparib in Treating Patients With Advanced Glioma, Cholangiocarcinoma, or Solid Tumors With IDH1 or IDH2 Mutations,

CURRENTLY RECRUITING! Roswell Cancer Center- SurVaxM Vaccine-Brain Cancer Immunotherapy,

Locations for the SurVaxM Vaccine recruitment include: Roswell Park Cancer Center, NYU Langone, Dana-Farber Cancer Institute, Overlook Medical Center, Norton Cancer Institute Brownsboro, Baptist Health Miami Cancer Institute, Texas Oncology-Austin Brain Tumor Center, Fred Hutchinson Cancer Center,
UCSF Brain Tumor Center

CURRENTLY RECRUITING! Ivy Brain Tumor Center- INFIGRATINIB IN RECURRENT GLIOBLASTOMA PATIENTS (phase 0 trial),

CURRENTLY RECRUITING! Ivy Brain Tumor Center- Phase 0 Clinical Trial for Recurrent Glioblastoma,

CURRENTLY RECRUITING! Lenox Hill/Northwell Health- Tissue autograft to bypass the blood brain barrier (BBB) in human glioblastoma multiforme,

CURRENTLY RECRUITING! University of California San Francisco- A New Way to Treat Children and Young Adults With a Brain Tumor Called NGGCT (ages 3-30)

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