S3 Ep. 8: “A 5 year old with GBM shows us how to be brave ” Guest Kelly Barnhart

SEASON 3 Ep 8: “A 5 year old with GBM shows us how to be brave” Guest Kelly Barnhart


            It’s hard enough to imagine a young adult getting glioblastoma. But to hear of a baby having it truly tugs at the heart strings.

Kelly Barnhart shares her incredible story with us of her 5 year old son Carson’s GBM story.

A mother of three, a wife, and an educator in the Buffalo school system as well as through Buffalo Hearing and Speech, Kelly has made it her mission to share Carson’s pediatric cancer story to highlight congenital glioblastoma.

Five years ago at five month’s old, Carson was diagnosed with stage IV brain cancer–glioblastoma. He underwent aggressive treatment as Kelly shares and is now thriving as a five year old, with his most recent scan being in August 2023 showing “no evidence.”

Kelly opens up about the difficult journey of pediatric brain cancer and tips for other families struggling with this diagnosis, including caregiver tips, and how she and her husband have endured and continue to have a beautiful loving relationship.

Hear more of our conversation now!

Want to see more of our new The Grace Walk short videos? Visit @thegracewalks on Instagram.

Season 3 Premier Sponsors:







Episode Sponsor:




Resources from SEASON 3 Ep. 8:


ACS Journals: The Impact of Childhood Cancer on Families

Harvard Health Publishing- Positive Thinking May Help You Live Longer,

Psychology Today- Hope and Faith as a Healing Concept,

LifeSpan News- DCVAX-L phase III news

Clinical Trials:

CURRENTLY RECRUITING! Imvax Inc. IGV-001- Phase 2b Clinical Trial Combination Immunotherapy in Newly Diagnosed Patients With Glioblastoma,

CURRENTLY RECRUITING! Roswell Cancer Center (plus 15+ other centers)- SurVaxM Vaccine-Brain Cancer Immunotherapy,


CURRENTLY RECRUITING! Ivy Brain Tumor Center- Phase 0 Clinical Trial for Recurrent Glioblastoma,

CURRENTLY RECRUITING! Lenox Hill/Northwell Health- Tissue autograft to bypass the blood brain barrier (BBB) in human glioblastoma multiforme,

CURRENTLY RECRUITING! BSW Health- Treatment of Recurrent GBM With APG-157 Via Expanded Access,

CURRENTLY RECRUITING! MD Anderson Cancer Center (includes GammaTile Therapy)- Phase 3 Clinical Trial for Newly Diagnosed Metastatic Brain tumors












For our grief blog, visit here. For more resources, visit our resource page here.

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